Endometriosis

亚洲色吧 Endometriosis Research Group

Led by Prof Louise Hull, the 亚洲色吧 Endometriosis Research Group is committed to improving awareness of endometriosis, providing evidence-based information and facilitating accessible diagnosis of endometriosis, to women, their families and health providers.

Established in 2006 the group is currently supported by Commonwealth Government Funding, through the Medical Research Future Fund Primary Health Care Research Data Infrastructure Program and the Public Health and Chronic Disease Program, as well as through Endometriosis Australia.

Endometriosis team

L-R: Nicola Mathews, Dr Nimantha Abeygunasekara, Prof Gustavo Carneiro, Dr Hu Wang, A/Prof Louise Hull, Dr Jodie Avery, Dr Beck O鈥橦ara, Aisha Sirop, Kate Chadwick, Yuan Zhang

  • What is endometriosis?

    Endometriosis is a common, chronic, inflammatory disease, causing period pain for 听women and those assigned female at birth. It is where tissue similar to the endometrium grows outside the uterus. Endometriosis is usually underdiagnosed with an average of 听from first symptoms to diagnosis.

    Reproductive hormonal changes each month drive an excruciating cycle of endometriosis breakdown and remodelling. If undiagnosed, chronic pelvic pain, sexual pain, fatigue, anxiety, and depression may result. Endometriosis is associated with an increased risk听of infertility, autoimmune conditions, cancer, and heart disease.

  • Research Team

    听Robinson Research Institute, Group Lead and Chief Investigator

    Louise has worked in fertility services since she graduated as a doctor in 1991. During this time she has been delighted to help many couples conceive, as well as promote the development of improved fertility treatments through research and education. She works at the Robinson Research Institute, University of 亚洲色吧, Women鈥檚 and Children鈥檚 Hospital, 亚洲色吧 and in private practice at .

    Louise became an Obstetrician and Gynaecologist (FRANZCOG) after gaining clinical experience working in IVF units in Christchurch, New Zealand, Cambridge, UK and 亚洲色吧, Australia, including Bourn Hall, the fertility centre where the first IVF baby was born. She was awarded the Certificate in Reproductive Endocrinology and Infertility (CREI) sub speciality qualification by RANZCOG in 2006.

    Louise completed a PhD s in Endometriosis at the University of Cambridge, UK in 2006. She was appointed to the University of 亚洲色吧 in 2006 where she established and led the Endometriosis Group at the Robinson Research Institute. Her research focuses on the basic science of endometriosis, developing new diagnostics for endometriosis and conducting Phase 3 and 4 pharmaceutical trials.

    She is an international ambassador for the World Endometriosis Society, a Medical Advisory Board member for Endometriosis Australia and EndoNZ and participated in the National Action Plan round Table for Endometriosis by invitation from the Minister of Health. She has several national and international collaborations and has been awarded considerable grant money over the last 2 years to further endometriosis research in Australasia.

    More recently, Louise has conducted research exploring the immunology and biology of implantation and has participated in biotechnology and pharmacology sponsored clinical trials in the IVF industry. She is the Deputy Clinical Leader of the Fertility and Conception Theme at the Robinson Research Institute, the co-chair of the Special Interest Group for Implantation of ASPIRE and has funding for several research projects exploring recurrent implantation failure and miscarriage.

    Louise publishes widely, presents at international conferences, supervises PhD students and teaches reproductive medicine to medical students, registrars and reproductive medicine fellows. Additionally, Louise has been an associate editor for Human Reproduction, chaired several grant committees, sits on the Jean Hailes Governance Committee for the endometriosis national action plan and has been on the board of 3 IVF and software companies and 2 pharmaceutical medical advisory boards.

    Lastly, Louise has founded 2 IVF units and in her roles as Scientific Director and New Developments Director, has been integral in introducing novel treatments, laboratory methods and models of care to the IVF industry. She is currently the Written Exam Chair for the Certificate in Reproductive Endocrinology and Infertility (CREI) subspeciality for RANZCOG and the treasurer of the ANZCREI society.


    , Robinson Research Institute, Senior Research Fellow and Imagendo Program Lead

    Dr Jodie Avery BA, BAppSc, MPH, PhD is a social researcher with advanced skills in quantitative and qualitative research methodologies, with a background in radiology. Currently Senior Research Fellow with the Robinson Research Institute, University of 亚洲色吧, and Program Manager of the $1.9M MRFF Funded IMAGENDO Endometriosis Imaging Study, developing a cost-effective, accessible, and accurate method to non-invasively diagnose endometriosis. Artificial intelligence using ultrasound and MRI images will develop diagnostic algorithms that estimate the likelihood that an individual has endometriosis. Images uploaded by in-built software in imaging machines, will be analysed by this algorithm in real time on a cloud-based digital platform.

    As a chronic disease epidemiologist, Jodie鈥檚 research concerns the intersection of chronic reproductive health conditions with psychosocial factors that may influence other awareness, diagnosis and lead to other associated comorbidities. This includes investigating psychosocial and mental health aspects of chronic conditions such as Endometriosis, Polycystic Ovary Syndrome (PCOS), and Incontinence throughout the life course. Jodie hopes to increase awareness and develop new diagnostic techniques for timelier diagnosis, as well as appropriate care suitable for individual needs.

    Jodie was awarded a 2021 Emerging Leader Development Award and a 2019 Women鈥檚 Research Excellence Award from the University of 亚洲色吧, a 2018 Robinson Research Institute Career Development Fellowship, and a 2018 Australian Federation of University Women SA Trust Postdoctoral Award. In 2017 she undertook a Career Development Fellowship from the NHMRC Centre for Research Excellence in PCOS. An experienced lecturer and tutor, she has taught widely and supervised students across Health Sciences, Psychology and Medicine programs over the past 15 years.


    , Robinson Research Institute, Grant Funded Researcher, EndoZone Project Coordinator

    Dr Beck O鈥橦ara, BBUS(hons), P.G Cert (Health Promotion), PhD is a psychosocial and digital health researcher with experience in both qualitative and quantitative research methods. Dr O鈥橦ara鈥檚 current research focuses on integrating digital health technologies to support endometriosis diagnosis and management. She coordinates the EndoZone project a co-created digital health platform with the endometriosis community, that empowers and supports people affected by the disease. It addresses community driven priorities such as improving doctor and patient communication, addressing pain normalisation and pain management. She is also a CI on the Imagendo project which uses machine learning (AI) to develop an algorithm to diagnose endometriosis from MRI and Transvaginal Ultrasound Images.

    Dr O鈥橦ara completed her PhD at Monash University in 2019, where she conducted a mixed-methods study examining women鈥檚 experiences of managing endometriosis in Australia and the role of self-management in this disease. Prior to this, she established a 10-year research career in chronic disease, health policy and health promotion, working for state and local government, non-profit organisations and universities. She has conducted research in regional and remote areas and has contributed to projects investigating experiences of complex conditions like diabetes and with vulnerable population groups including women from Aboriginal and Torres Strait Islander and culturally and linguistically diverse communities.

    The EndoZone team were awarded the Robinson Research Institute Community Engagement Award. Beck was awarded a Graduate Women Victoria Special Award (2018 & 2019 and a Australian Research Training Program Scholarship (2016-2019).